FORGE UK Trustees recently met with key individuals from the global autoinflammatory disease sector when they travelled to the NIH in Bethesda, Maryland USA on April 16-17, 2026.
Trustees Steve Hyer and Jonathan Hyer visited the event in FORGE’s capacity as global Patient Advocacy Charity representing families and individuals with the rare genetic disease SAVI .
The 2 day conference brought together organisations and individuals working in both clinical and research fields, promoting current thinking and clinical developments in the sector.
Jonathan Hyer presented at one of the scheduled Conference sessions, highlighting of the importance of Patient Advocacy and Involvement when working with clinicians and researchers, in addition to raising awareness of Foundation to Overcome Rare Genetic Errors to event attendees
Jonathan Hyer (left) and Steve Hyer (right) in front of FORGE’s poster at the NIH Conference, Bethesda.