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Donate

Your donation gives support and hope to the many families affected by these life-limiting


Question

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Question

So where will your money go?

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Action 1 of 4

We use donations to

Fund Research

FORGE is committed to ensuring every penny or cent raised to support those affected by rare genetic diseases is used effectively. That’s why our research programmes are designed for maximum efficiency.

We will use the funds raised to support projects approved by the world experts on our scientific advisory group. We may also support existing projects aligned with our mission. By staying informed on the latest developments, we aim to avoid duplicating research efforts and unnecessary costs. This ensures we can offer our support where it will have the greatest impact for patients.

 

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Action 2 of 4

We use donations to

Create Community

Patients affected by rare diseases are often isolated from others with the same condition, sometimes even continents apart. That’s why FORGE operates globally, connecting with those affected to offer support and making peer connections possible.

We want to connect small numbers of patients worldwide and provide meaningful services that inspire renewed hope for the future.

 

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Action 3 of 4

We use donations to

Spread the word

Spreading awareness about rare genetic diseases is key to our work.

We aim to:

Educate and inform affected families, 
helping remove their sense of isolation.

  • Show patients and caregivers how 
to manage their conditions.
  • Raise awareness and foster networking 
among professionals, maximising valuable 
time and resources, and minimising duplication.
  • Ensure research breakthroughs are 
effectively transferred when possible.

We also intend to contribute to public and clinical knowledge about rare genetic disorders, to improve outcomes for those affected.

Where we will be spending your money

We are currently establishing FORGE by bringing in the staff and resources needed to fulfil our mission. We are doing this by connecting with charitable trusts and foundations and leveraging our networks to secure support from major donors. FORGE trustees intend to apportion the funds we secure as follows:

Where your money will go

20%: Patient Support Services

  • Provide emotional and peer support for patients and their families
  • Develop resources and educational materials
  • Organise support group meetings and workshops.

40%: Research Funding

  • Support research projects aimed at understanding rare genetic diseases
  • Fund clinical trials for new treatments or therapies
  • Collaborate with researchers and institutions to advance scientific knowledge.

40%: Advocacy and Awareness

  • Raise awareness about rare genetic diseases through campaigns and events
  • Advocate for patients’ rights and policy changes at local and international organisations to improve patient care.
Get Involved
Donate

Able to give more?

Substantial Donors

Are you an individual or a business in a position to help us either with your time or with more regular or higher levels of donation?

We are actively seeking businesses and organisations that want to support our message. Perhaps you work in the health sector or have clients experiencing a rare disease, and could consider us as your Charity of the Year. Or could we agree on a collaboration which would be mutually beneficial? If you’re interested in learning more, let us know by getting in touch, and we’ll be pleased to arrange initial discussions between you and our trustees.

If you’re an individual, why not visit  our volunteering section to explore Ambassador or Trustee Opportunities with FORGE? Or talk to us if you would like to help support one of our projects financially.

Contact us

A different kind of donation

Legacy Donations

A lasting gift to support our future work on rare genetic diseases.

By leaving a legacy in your Will, you safeguard our future work and give hope to future generations. 

Legacies are an important source of income for charities. If you feel you could leave a legacy to FORGE in your Will, please download our legacy kit using the button below. It tells you all you need to know about how to leave a gift in your Will, with step-by-step instructions and all the forms you might need.

Need extra help? Our team is here to answer any questions you may have.

Contact us
Download legacy pack

A different kind of donation

Corporate Sponsorship

FORGE has been fortunate to receive support from several businesses that have either contributed to our work financially or provided pro bono services.

Could you join this wonderful group of corporate supporters? Could you consider us as your Charity of the Year or support one of our projects?

To talk to us about options for your company, please share your details. We will arrange for an informal chat about how we could work together.

Contact us