Fundraising

Find out more about the people who volunteer for FORGE and how you can get involved. Here’s what some of our volunteers think about working with FORGE

Help us out by

Fundraising, your way

Could you arrange a one-off event or become part of our dedicated FORGE FUNDRAISERS team?

Could you mobilise support at your workplace through regular small events and collections? Or suggest us as your Charity of the Year?

If so, download our free fundraising pack – it’s full of helpful ideas and ways to get started. Our team is here to cheer you on, support your efforts and give you the extra help you might need.

Current fundraising channels:

Regular fundraising events

FORGE’s latest fundraising event was to climb Mount Snowden in Wales which took place at the end of August 2025. Our intrepid band of supporters braved terrible conditions to raise over £5000 for the charity. We next intend to take our mountain climbing fundraising a full half a world away, to Mount Kosciusko is Australia, where we are attempting another climb in January 2026. Check the website for updates in the New Year!

Building a strong Foundation

FORGE CONNECT is our project to build and unite the rare disease community globally – to include patients, carers, clinicians and researchers. This will ensure we have a strong and informed voice behind us, when developing the services, advocacy and research opportunities that can empower those with rare diseases worldwide.

Building our subscriber base

Could you help people with rare genetic disease by making a regular donation to FORGE each month? Small donations grow into large amounts if enough people join together to support our mission. There is so much work to do, so much support needed, to address the inequality of treatment for people with rare genetic diseases. Big Pharma consider research into rare disease non-viable economically. FORGE wants to change this environment altogether – bringing information, hope and empowerment to all those affected.

Fundraising inspiration:

Quiz night
Let us know if you are interested in hosting a one-off or regular quiz evening for FORGE.
Marathon places
We have marathon and other sponsored running places in both Australia and for the London Marathon 2027.
Host a fete
Support building funds and awareness in local communities is so important to us in developing our services and reaching those who need us.
Bake sale or Coffee morning
At home or at work….
Bingo night
This and many other ideas are in our download pack. Please take a look